Jacoby Turn's One.....

Let me start catching up. The most important thing I've not blogged....the baby turned one!!!

Jacoby Jax Conger - our Christmas baby 12.25.08 Who knew what the first year would bring? It was full of ups and downs, but keeping FAITH that God is in control, it turned out to be a wonderful year.

Jacoby started his Birth "day" out at 5am ready for Santa! Maddux and Kaleigh choose to sleep in this Christmas (the first Christmas ever -makes me so sad they are too old to enjoy Santa), but I have a feeling next Christmas Jacoby will be waking them up, I can't wait!!! Finally Maddux and Kaleigh woke up and we had our family Christmas. It wasn't long till Jacoby went down for a nap, the longest nap he's ever taken. At dinner time Chief, Nana, Grannie, Bryan, Maddux, Kaleigh, Jacoby and I started our BIRTHDAY PARTY!!! Soup and sandwiches hit the spot, before we helped ourselves to the Cookie Monster Cupcake Cake.

Cookie Monster Cake designed and prepared by sissy - THANKS Kaleigh!!!!

So it came time to sing HAPPY BIRTHDAY...............

Jacoby freaked out at everyone singing at the same time...................He turned and crawled up his da da as fast as he could..........So with Jacoby's oral sensory disorder, that means he still doesn't eat food and does not like anything in his mouth. We thought this might not go so well.Well, we were wrong, maybe it's because I don't cover his baby food with frosting!!!!!

HAPPY BIRTHDAY BABY BOY...................

Blogger Block or Enjoying Life.....

Okay so I haven't updated the blog in months! Too many good things happend in those months and I took the time and enjoyed them. Time with my husband, kids and family. That time you never get back while attempting to blog about them so you can remember them later! I'm working on catching up, but I'm also attempting to stay on top of laundry more, maybe cook a few more meals, taking the time to play with Jacoby more and enjoy my days more. Notice I've not included working out more, yet!!

I've had some good conversations with other stay at home moms. Why is it called "stay at home mom"? It's more like laundry service, dish washer, maid, lawn care service, shopping expert.....none of which actually allows you to be a mom.

So I'll start catching the blog up soon!

Till then....

Let me think about it.

Pure Joy Update ............

Snap into a Slim Jim! Working on the Oral Sensory disorder, by letting him chew on different taste and textures.

Played a little baseball this weekend. Maddux did great!

The Fashion Police - Kaleigh and Chelsea went to a party Halloween night! Movie's, games, dancing, food and fun!

Maddux and Ohio after beating Brewer! Great Game!!!

Kaleigh at tumbling! Has mastered the round off back handspring, just working on multi back handsprings!

Aces volleyball #20. Win again! They are pretty good, if I can say so myself! We are finally at the bump-set-spike stage and it actually works!!

The After Party - After the Jr. High Halloween dance a few got together for an after party! I've never seen anything so fun! They had a blast!

Jacoby working hard during PT!

Bryan and Maddux off to the Hall of Fame luncheon, where Coach Allen was inducted. They looked so nice!

SHS Homecoming 2009

For all my non-Texas friends - Kaleigh is wearing a Homecoming mum. To all my Texas friends, did you know that we might be the only state that has this tradition? The flower shops, making some money, here in Texas!!!!

NO more shots!

$120,000 worth of ACTH - our six week supply!

Supplies ready to give one shot!?!?

Numbing medicine was placed on alternating legs, one hour before shot time. It worked wonders! The ACTH is a gel and very thick and takes forever to get out of the syringe.

The shot didn't hurt towards the end, he just hated being held down.

Just a little love from bubby makes it all better!

We had our follow up Neurology appointment on Tuesday. We had a normal EEG for the first time!!! We are so excited about the great news! They are running yet another test, to help rule out other possible problems. The genetic test they are running is for Menke's disease. We suggest you don't read up on it, it's highly depressing, have FAITH! So we will wait another 4-6 weeks for test results, we'll be glad when we can cross this one off our list.

Jacoby is on a Z-pack, again for another ear infection. While at the Dr. on Monday for the ear infection, we found out what we thought we knew all along, that Jacoby is legally blind. While we have our moments and still do, we are trying to be strong. Why? Why? Why?

How do you take a blind child to a baseball game and say sit here and watch? Come on let's go watch your brother's football game? Did you see your sister stick the landing on that flip? How do you talk to a child who is blind? It seems like every WHY we have God is showing us the way. Thanks to ECI, Dr. Edwards, our family and friends who keep reaching out.

On Tuesday, Maddux's football team played Weatherford and won 20-0, he scored 2 TD's! Kaleigh has been in cheer camp all week. She is loving it!!! Performs Friday night during the homecoming game. I hope it works out and I can get some good pictures! Tonight she has her first volleyball practice and tumbling.

This weekend is family weekend at Tarleton! We are very excited to meet the baseball players parents and possibly catch a sneek peak of the team at a scrimmage!

It's that time of day again, to load Jacoby up in the car to start our taxi service!

The Smell of Football is in the air...........

No seriously have you ever smelled a Jr. High Football player after a game? It burns your nose!

Maddux is playing his first year of tackle football. We have been super excited about what football might bring out in Maddux. So after the first day of practice he told us I'm trying out for Quarterback and Linebacker. Neither one of his choices shocked us, but we knew the QB spot is a hard one to win. Days went by, typical Jr. High comments are made, "you should just be a receiver or a running back, you be guaranteed a spot on the A team."

We asked Maddux numerous times, what position do you really want to play? Every time the answer was QB! So we had the talk about doing what you really want to do and not giving into what everyone else wants you to do.
So the day before teams were chosen one of the coaches tells Maddux, you can play A team receiver and safety or B team QB and linebacker, sleep on it and tell me tomorrow. Maddux precedes to tell us he has a decision to make. So Bryan and I don't give any input, this is going to be his decision! He said "I'm picking B-team." Bryan and I both said - WHY? He quickly said,

"because I'm a leader!"

We were so PROUD of his choice and his reasoning, but quickly ran out of the room, trying to hold back those PROUD tears.
So last night was the first game! The 7th grade B team played the Cleburne (Smith) team. First play of the game Maddux throw a TD pass! Second play he ran, he runs 80 yards for a TD. Throws 2 more TD's during the game. He played linebacker-a position he loves!

Thanks to NANA who stayed home with JJ and Kaleigh, so that mom and dad could be there for our first game of our first year of YELLOWJACKET FOOTBALL!!!!

10 more ACTH shots!!!!

Is this the same little boy? Poor thing - side effects to ACTH - Moon Face!

I think he's got a Moon Face!

He was very energetic this morning and wouldn't stay still so I could take a picture. It may be blurry but he's got a smile on his face.

We have 10 more ACTH shots! Personally I won't miss giving his shots everyday, I'm ready to be mom and not a nurse. With stopping the shots a lot of additional worries will start. #1. Can we keep him germ free for 3 months? Immunity surpressed is not fun. #2. Will the seizures return? In what form will the seizures return? We've been told we will be on med's for the rest of his life. #3. Will we ever get back on a schedule? Will we sleep more than 2 hrs at a time? #4. will progression return? Can we regain motor skills? #5. Can we just set back and wait?

It's time for the Moon Face baby, to have another ba-ba so I better get to mixing it~