Thursday, September 24, 2009

NO more shots!

$120,000 worth of ACTH - our six week supply!
Supplies ready to give one shot!?!?

Numbing medicine was placed on alternating legs, one hour before shot time. It worked wonders! The ACTH is a gel and very thick and takes forever to get out of the syringe.


The shot didn't hurt towards the end, he just hated being held down.



Just a little love from bubby makes it all better!
We had our follow up Neurology appointment on Tuesday. We had a normal EEG for the first time!!! We are so excited about the great news! They are running yet another test, to help rule out other possible problems. The genetic test they are running is for Menke's disease. We suggest you don't read up on it, it's highly depressing, have FAITH! So we will wait another 4-6 weeks for test results, we'll be glad when we can cross this one off our list.
Jacoby is on a Z-pack, again for another ear infection. While at the Dr. on Monday for the ear infection, we found out what we thought we knew all along, that Jacoby is legally blind. While we have our moments and still do, we are trying to be strong. Why? Why? Why?
How do you take a blind child to a baseball game and say sit here and watch? Come on let's go watch your brother's football game? Did you see your sister stick the landing on that flip? How do you talk to a child who is blind? It seems like every WHY we have God is showing us the way. Thanks to ECI, Dr. Edwards, our family and friends who keep reaching out.
On Tuesday, Maddux's football team played Weatherford and won 20-0, he scored 2 TD's! Kaleigh has been in cheer camp all week. She is loving it!!! Performs Friday night during the homecoming game. I hope it works out and I can get some good pictures! Tonight she has her first volleyball practice and tumbling.
This weekend is family weekend at Tarleton! We are very excited to meet the baseball players parents and possibly catch a sneek peak of the team at a scrimmage!
It's that time of day again, to load Jacoby up in the car to start our taxi service!

2 comments:

  1. Sweet Melanie, I wish there was an answer to your "why?" Just know that God will not give you more than you can handle with His assistance. And if you are not under attack, then you are doing something wrong. Which makes me think you all are doing something RIGHT!

    Hang in there. I am praying for you in SC!

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  2. I am a little late to this post but happy to hear your good test results and sorry to hear your sad news as well. You and Bryan are two amazing people and I know Jacoby got the best family possible for his journey on earth. We love you guys!

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